Hospice and palliative care professionals are experts at caring for individuals and families experiencing serious or life-limiting illnesses. Not everyone feels safe seeking out their expertise, however: LGBTQIA+ people may be deterred from seeking support because of barriers-both overt and subtle-that hospice and palliative care programs and professionals erect through their policies and practices. This book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care. It equips both new and experienced hospice and palliative care professionals with the knowledge they need to ensure that all people receive high-quality care.
Kimberly D. Acquaviva surveys fundamental concepts and the latest clinical developments, integrating relatable anecdotes and poignant personal reflections. She discusses her own experience caring for her wife, Kathy, who was diagnosed with ovarian cancer in 2019. Unable to find a local hospice with an LGBTQIA-inclusive nondiscrimination statement, let alone one whose staff had been trained to provide nondiscriminatory care to LGBTQIA+ people, Kathy died at home six months later without hospice care.
Acquaviva offers clear, actionable strategies for palliative care and hospice physicians, advanced-practice registered nurses, registered nurses, social workers, counselors, chaplains, and others. She also emphasizes how incorporating LGBTQIA-inclusive practices can transform work with every person receiving care. Anchored in the evidence and written in plain language, this book is the definitive guide for hospice and palliative care professionals seeking to deliver exceptional care to all the patients and families they serve.
By:
Kimberly D. Acquaviva
Imprint: Columbia University Press
Country of Publication: United States
Dimensions:
Height: 229mm,
Width: 152mm,
ISBN: 9780231206433
ISBN 10: 0231206437
Pages: 376
Publication Date: 10 October 2023
Audience:
Professional and scholarly
,
Undergraduate
Format: Paperback
Publisher's Status: Active
About Language in This Book Acknowledgments Preface Introduction: From “Special Population” to Inclusion—A Paradigm Shift 1. Self-Awareness and Communication 2. Sex, Gender, Sexual Orientation, Behavior, and Health 3. Understanding Attitudes and Access to Care 4. The History and Physical Examination 5. Shared Decision Making and Family Dynamics 6. Care Planning and Coordination 7. Ethical and Legal Issues 8. Patient and Family Education and Advocacy 9. Psychosocial and Spiritual Issues 10. Ensuring Institutional Inclusiveness 11. Advocating for Change Beyond the Institution Glossary Supplemental Reading List About the Content Expert Reviewers References Index
Kimberly D. Acquaviva is the Betty Norman Norris Endowed Professor at the University of Virginia School of Nursing. She is the author of LGBTQ-Inclusive Hospice and Palliative Care: A Practical Guide to Transforming Professional Practice (2017), which received the 2017 AJN Book of the Year Award in the Palliative Care and Hospice Category. She is an AASECT-certified sexuality educator with a master’s degree in social work and a PhD in human sexuality education, both from the University of Pennsylvania.
Reviews for The Handbook of LGBTQIA-Inclusive Hospice and Palliative Care
[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews * Acquaviva's heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals, but also touches the soul. Through personal social media posts from the author and her late wife who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang
