Childhood Onset Severe Neurological Impairment: Where medical complexity and uncertainty meet

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Dr Julie Hauer (Assistant Professor, Assistant Professor, Harvard Medical School, Boston, Massachusetts, USA)

Childhood Onset Severe Neurological Impairment

Where medical complexity and uncertainty meet

Dr Julie Hauer (Assistant Professor, Assistant Professor, Harvard Medical School, Boston, Massachusetts, USA)

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English

Oxford University Press
28 February 2025

Congenital diseases & disorders; Neurology & clinical neurophysiology; Paediatric medicine; Palliative medicine; Paediatric nursing

Childhood Onset Severe Neurological Impairment confronts the uncertain decisions resulting from the intersection between what is intended and what is possible, to achieve the best certainty that lessens decisional regret. Evidence-based and hypothesis-driven strategies are offered to improve health, while a framework covers when and how to reflect with parents and guardians, utilizing an iterative process.

Specific circumstances include intractable symptoms, feeding intolerance, intestinal failure, and use of technology. Communication is a cornerstone of this book, with strategies offered throughout and for each specific problem. This book will reinforce and expand skills, while promoting resiliency for individuals and teams. It provides innovative tools from a combination of evidence and the author's 27 years of experience. The content will inform research and quality improvement projects, advancing the quality of our care for children with severe neurological impairment and their families.

By: Dr Julie Hauer (Assistant Professor Assistant Professor Harvard Medical School Boston Massachusetts USA)
Imprint: Oxford University Press
Country of Publication: United Kingdom
Dimensions: Height: 235mm, Width: 155mm, Spine: 25mm
Weight: 654g
ISBN: 9780192867605
ISBN 10: 0192867601
Pages: 432
Publication Date: 28 February 2025
Audience: Professional and scholarly , Undergraduate
Format: Paperback
Publisher's Status: Active

Julie Hauer is faculty at Boston Children's Hospital. She has 27+ years of expertise in the care of children with severe neurological impairment, focused on those who have co-morbidities that impact health and quality of life, resulting in complex medical care and decision-making. Her work is focused on the intersection between complex care and palliative care, including development of assessment tools and communication strategies with parents. Innovative work includes chronic neuro-pain screening that guides mechanism specific treatment, care plans that distinguish Acute, Bridge, Chronic, and Direction phases of care, and differentiating features between feeding intolerance versus intestinal failure at end-of-life.