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Agnes Nsofwa is the founder of the Australian Sickle Cell Advocacy Inc. (ASCA), an organisation dedicated to raising awareness and improving the lives of people affected by sickle cell disease (SCD) in Australia. Under her leadership, ASCA has become a vital platform for patients and families, particularly within multicultural communities, offering support, resources, and advocacy for better healthcare services and policies. Her work is driven by personal experience. Born in Zambia, where sickle cell is more common, Nsofwa witnessed the stigma and lack of proper healthcare faced by those with the disease. When her daughter was later diagnosed with SCD in Australia, she realised the urgent need for awareness and support in a country where knowledge of the condition remained limited. This inspired her to establish ASCA to bridge the gap and empower affected families. Beyond Australia, Nsofwa has also championed sickle cell advocacy on the global stage through conferencesand international networks. Her efforts have helped raise the profile of SCD, ensuring individuals living with the condition receive recognition, support, and better care.
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