Taming the Chaos of Dementia

"Dementia takes a toll on loved ones, and Huelat, with her daughter, Pochron, offers a candid account of lessons learned during her own caregiving journeys. She watched over her mother, diagnosed with Parkinson's and dementia, and her husband, diagnosed with Alzheimer's. Huelat's well-written guide should appeal to a broad audience since dementia is the most common disability among the elderly.... She offers sound ideas such as installing motion-sensor lights by bathrooms and stairs, using clothing with Velcro and snaps, exploring the outdoors, making a playlist of favorite music, and reminiscing with photo albums. ""Our people have had long and rich and interesting lives,"" Huelat writes. ""The dementia part is only a short chapter."" Helpful and uplifting. -- ""Booklist"" Despite billions in research dollars and numerous promises of pharmacologic cures that keep Wall Street buzzing - the ""silver bullet"" to relieve society of the burdens dementia eludes us. Barbara Huelat has seen dementia as a family member, care giver, designer and researcher. Few even approach her level experience and perspective on the subject of living with dementia. But beyond that breadth of experience, expertise, research and knowledge is a profound human hand in all the insights, pearls, hacks and advice. That steady human touch guiding the application of science and experience is really needed to ""Tame the Chaos"" Huelat and Pochron have been able to accumulate, assemble and present what is known scientifically combined with touching and real human experiences so that we can apply knowledge to challenges of dementia. Spoiler alert! -The reader may well end up with more insight into dementia care than a number of the healthcare providers they will encounter in their journey. --Mik Pietzrak Huelat and Pochron liken being a personal caregiver for someone who has dementia to being like Alice finding herself in a disturbing new Wonderland after tumbling down a rabbit hole. Even more troubling is the reality that the size and gravitational pull of that rabbit hole will continue to exponentially increase as the baby boom generation ages into old age. In the absence of a cure or prevention for dementia, therapeutic interventions, including supportive home design features, have the potential to offer the most wide-ranging treatment opportunities to people around the globe. The need for sensitively designed home environments that support resilience in people and their caregivers is becoming critically important. Barbara Huelat, in particular, tackles this topic with the same research-oriented attention to detail as she has in her design work for the last five decades, providing the next generation of caregivers with practical tools and advice on how to leverage design to thrive in a complex situation. --Debra Levin, Hon. FASID, EDAC, president and CEO of The Center for Health Design Taming the Chaos of Dementia brings valuable insight in how dementia induced behaviors of anxiety and confusion can be moderated with simple home environment interventions like color, sound, light and sensory engagement. For caregivers seeking to practice creative approaches enriching the lives of those journeying with dementia while caring for self, this book provides an insightful path for practical problem solving. --Ruth Shea, OFS, MSW, LICSW, geriatric social worker We are all caregivers at some point in our lives but taking care of a loved one is often not openly discussed. This remarkable book dares to be honestly raw about caring for a loved one with dementia. Compassion, frustration, tears, patience, impatience, acceptance, guilt - the full range of emotions experienced by both those with dementia as well as those providing the care. Exhaustive emotions that run in a circle while you grieve the loss of a person you once knew. There is only the present moment a caregiver gets to see, a glimpse, a hug, a tear, a touch, and hope for a brief glimmer of recognition. This amazing, empathetic, book covers not only the experiences through personal stories but provides evidence-based insights and solutions to help all caregivers cope with the process of caring for a loved one with dementia, or ""our person"" as so poignantly referenced in Taming the Chaos of Dementia. This is a book for everyone to read - as it sparks the humanity in all of us. --Jane Rohde, AIA, FIIDA, ASID, CHID, ACHA, EDAC, principal of JSR Associates, Inc. and founder of Live Together, Inc."