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Surviving Dementia Care

The Realities of Caregiving

D. Grant Campbell

$54.99

Paperback

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English
University of Toronto Press
24 February 2026
Surviving Dementia Care is a compassionate and insightful guide for anyone navigating the challenging journey of caring for a loved one with dementia. Drawing on research from information studies, literary studies, and interviews with family caregivers, this book reimagines dementia care

not as a set of skills to master, but as a deeply human experience to endure and understand.

To make sense of the copious information on dementia, the book introduces four distinct modes of understanding dementia care, each offering a unique perspective and source of strength. The Describing mode helps caregivers grasp the medical realities of dementia. The Understanding mode addresses the shifting landscape of communication as cognitive abilities change. The Advocating mode guides readers through the complexities and anxieties of securing proper care within an often-confusing health care system. Finally, the Imagining mode reveals how creativity can foster moments of joy and connection, even in the midst of loss.

By filtering the vast array of information on dementia through these practical and empathetic modes, Surviving Dementia Care empowers caregivers to find the guidance they need at each stage of the journey, avoid information overload, and preserve the loving bonds that inspired their caregiving in the first place.
By:  
Imprint:   University of Toronto Press
Country of Publication:   Canada
Dimensions:   Height: 229mm,  Width: 152mm,  Spine: 15mm
Weight:   350g
ISBN:   9781487561925
ISBN 10:   148756192X
Pages:   248
Publication Date:  
Audience:   College/higher education ,  Professional and scholarly ,  Primary ,  Undergraduate
Format:   Paperback
Publisher's Status:   Active

D. Grant Campbell is a professor emeritus at Western University in Canada. He taught at Queen's University, University of Toronto, and Dalhousie University, before spending 28 years on the Faculty of Information and Media Studies at Western University, where he earned two awards for excellence in teaching.

Reviews for Surviving Dementia Care: The Realities of Caregiving

""Whenever a family member of someone with an illness puts thought to paper in a sincere desire to help future caregivers, it is like shining a light in the darkness. We can all learn from those who walk the path ahead of us – sparing us some of the confusion and guilt of the learning process."" -- <B>Avis Favaro, Health Journalist, Contributor, CTV National News, and Podcast Host, Canadian Institute for Health Information</B> “Campbell makes a major contribution by taking us beyond his personal experience of caring for parents with dementia by unexpectedly pulling from the world of literature and information management to navigate the overwhelming world of dementia care. His approach never denies the reality of the task but with a clear-eyed perspective validates a caregiver's chaotic experience and brings to it more coherence, validation, and tolerance, ultimately helping anyone deal with dementia with more equanimity.” -- <B>Jonathan Hunter, Professor of Psychiatry, University of Toronto and Pencer Chair in Applied General Psychiatry, Sinai Health System</B> “Surviving Dementia Care offers a real and honest discussion of dementia care – led by someone who has experienced it. The author’s own experience with dementia care builds ethos, and it is a strength of this brave work. Sincere, informed, grounded, and inviting, the experience of reading often feels like a conversation.” -- <B>Tracy Moniz, Associate Professor of Communication Studies, Mount Saint Vincent University</B> “Surviving Dementia Care tackles an extremely important topic area in a novel manner, enabling readers to come to the issues in a new and effective way. We have here a librarian using his specialism to look for order in the chaos that is dementia caring, and it works. It was a genuine pleasure to read, and I learnt a lot.” -- <B>Alison Wray, author of award-winning The Dynamics of Dementia Communication</B>


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