What Do I Do Now: Respiratory Symptoms is the first book of its kind to succinctly describe the palliative care approach to patients experiencing respiratory symptoms throughout their illness trajectory. Dyspnea, also known as breathlessness, is one of the most difficult symptoms to experience and is also one of the most difficult to treat as the evidence-base for this symptom lags behind other prevalent symptoms, such as pain or nausea.
This volume brings together expertise from the fields of nursing, chaplaincy, social work, and psychology to address dyspnea from a palliative care context. Covering patients ranging from pediatric to geriatric, each chapter opens with a case study and provides context for the practical clinical content that follows.
Contributors Introduction 1. Dyspnea Assessment Margaret L. Campbell 2. Reducing Dyspnea by Optimizing COPD Treatment Miranda Wilhelm & Jennifer Arnoldi 3. Treating Chronic Severe COPD Breathlessness Lynn F. Reinke, Mary M. Roberts, and Tracy A. Smith 4. Dyspnea, COPD, and Pulmonary Rehabilitation DorAnne Donesky and Julie Howard 5. Treating Episodic Breathlessness Yvonne Eisenmann and Steffen Simon 6. Reducing Episodic Dyspnea in Heart Failure Beth B. Fahlberg and Ann S. Laramee 7. Dyspnea in Pediatric Congenital Heart Disease Jennifer Wright and Jessica L. Spruit 8. Treating Chronic Dyspnea in Patients with Lung Cancer Elizabeth A. Higgins, Susan Ezemenari, & Julia Arana West 9. Treading Dyspnea through Reducing Malignant Pleural Effusion Christine A. Crader 10. Treating Dyspnea in Lung Cancer with Non-invasive Ventilation Vittoria Comellini and Stefano Nava 11. Palliative Care for Infants with Broncopulmonary Dysplasia Christine A. Fortney & Jodi A. Ulloa 12. Reducing Dyspnea by Treating Ascites Habib A. Khan 13. Panting for Breath in End-Stage Dementia Hermien W. Goderie-Plomp, Carole Parsons, David R. Mehr, & Jenny T. van der Steen 14. Last Days with COPD Margaret L. Campbell 15. Withdrawal of Invasive Mechanical Ventillation Margaret L. Campbell 16. Palliative Sedation for Intractable Dyspnea Patricia Bramati and Eduardo Bruera 17. Sialorrhea in Amyotrophic Lateral Sclerosis Mark B. Bromberg 18. Death Rattle Margaret L. Campbell
Margaret Campbell is a Professor at Wayne State University College of Nursing. Her research focuses on respiratory symptoms for patients approaching the end of life. She developed the Respiratory Distress Observation Scale for use when patients cannot provide a symptom self-report. This system is now widely used across the U.S. and has been adapted with several non-English translations. She is widely published, serves on journal editorial boards, and reviews manuscripts.
