Promoting a more inclusive society for the elderly, people with disabilities and, more broadly, all of those in vulnerable situations, implies profound changes in the healthcare system in many countries.
This movement, known as “deinstitutionalization”, implies strengthening people’s participation in the decisions and activities that concern them, whether they live in an institution, in their ordinary environment, or in respect to their habits and life projects. The aim is to achieve social participation by considering the people we support as partners in our organizations, as genuine professional and institutional players who contribute to this transformation of the healthcare system.
This book brings together contributions from over 40 researchers from different countries (notably French-speaking and Canadian), as well as patients involved in research, experimentation or associations. These contributions examine the terminological and legal foundations of a more inclusive society – the different mechanisms, innovative forms of housing and ways of supporting the public and professionals in favor of inclusion – and the different models for animating territories, therefore fostering the community commitment of favoring inclusion.
Foreword xiii Denis PIVETEAU Introduction xvii Corinne GRENIER, Elizabeth FRANKLIN-JOHNSON and Giovany CAJAIBA-SANTANA I.1. Inclusion: challenging a social promise xviii I.2. Examining the inclusive ideal: three points of entry xx I.3. API Territories Chair: promoting enabling and empowering pathways xxi I.4. References xxii Part 1. Foundations for a More Inclusive Society 1 Introduction to Part 1 3 Corinne GRENIER, Elizabeth FRANKLIN-JOHNSON and Giovany CAJAIBA-SANTANA Chapter 1. Deinstitutionalization at the United Nations Versus the French Disability Sector 5 Estelle ARAGONA, Nicolas GUILHOT, Guillaume JAUBERT, Jean-Baptiste CAPGRAS and Guillaume ROUSSET 1.1. Introduction 5 1.2. Legal context 7 1.3. The blind spots of deinstitutionalization 9 1.4. Conclusion 13 1.5. References 16 Chapter 2. Deinstitutionalization: A Threshold-Based Perspective 19 Roland JANVIER 2.1. Introduction 19 2.2. Inclusion and deinstitutionalization 21 2.3. An alternative framework for analyzing organizations 25 2.4. Conclusion: inclusion via thresholds? 29 2.5. References 32 Chapter 3. Living Independently and Institutions 35 Loïc ANDRIEN, Arnaud BÉAL, Chantal BRUNO, Jean-Philippe COBBAUT, Dominique COSNIER, Etienne CREUSEVAUT, Souad CREUSEVAUT, Christophe DUPONT, Benoît EYRAUD, Marika LEFKI and Céline LETAILLEUR 3.1. Introduction 35 3.2. Experiences of autonomy and institutionalization 38 3.3. Discussion 43 3.4. Conclusion 46 3.5. References 46 Chapter 4. Managing Social Impact in Innovative Healthcare Organizations 49 Elise LECLERC and Thierry SIBIEUDE 4.1. Introduction 49 4.2. The need for social impact assessment in the health sector 50 4.3. Three conditions for using social impact assessment as a strategic management tool in healthcare innovation 54 4.4. Conclusion 60 4.5. References 61 Part 2. Support for Inclusion 65 Introduction to Part 2 67 Chapter 5. Reintegrating Children with Disabilities into Schools 69 Ophélia KARTI and Thierry CÔME 5.1. Introduction 69 5.2. Theoretical framework 71 5.3. Methodology and case study 73 5.4. Results 74 5.5. Discussion 83 5.6. Conclusion 84 5.7. Glossary 84 5.8. References 85 Chapter 6. Climate for Inclusion in the Workplace 87 Elizabeth FRANKLIN-JOHNSON and Katia RICHOMME-HUET 6.1. Introduction 87 6.2. Theoretical framework: workplace inclusion 88 6.3. Presentation of the study 91 6.4. Results 92 6.5. Conclusion 99 6.6. References 100 Chapter 7. Evolving Modalities of Support and Assistance: The Case of Peer Support 103 Maud NEZAN and Myriam LE GOFF-PRONOST 7.1. Introduction 103 7.2. The evolution of peer support from an ancient form of caregiving 104 7.3. Methodology 105 7.4. The challenges of peer support as a new mode of assistance 107 7.5. Conclusion 114 7.6. References 114 Chapter 8. The Rights of Persons with Disabilities in Primary Care 117 Valérie SIRANYAN and Mai-Anh NGO 8.1. Developing a Healthcare Democracy for equal opportunity 117 8.2. Part 1: patients’ and persons with disabilities’ needs of healthcare actors 119 8.3. Part 2: the practices of primary care providers 122 8.4. References 127 Chapter 9. Shared Housing: The Simon de Cyrène Association 131 Corinne GRENIER 9.1. Introduction 131 9.2. Research methodology 132 9.3. Context: inclusive housing in France and the SdC model 132 9.4. The first SdC shared housing project: an entrepreneurial initiative with institutional scope 136 9.5. The SdC Federation and spin-off projects 140 9.6. Conclusion: inventing ""our second wave"" 144 9.7. References 145 Part 3. Engaging Territories for Inclusion 147 Introduction to Part 3 149 Chapter 10. Aging in Place: MaillAGE Living Lab Case Study 151 Isabelle MARCHAND, Olivier LAAU-LAURIN and Jacob CADIEUX 10.1. Introduction 151 10.2. Framework 152 10.3. Strategies supporting target communities’ participation in the living lab ecosystem 155 10.4. Promoting older adults’ participation: implications for the MaillAGE living lab’s operations and stakeholders 158 10.5. Conclusion 161 10.6. References 161 Chapter 11. The Fight Against Loneliness: Social Experiments and Innovations 165 Roland RIZOULIÈRES, Stéphanie GENTILE, Felicia FERRERA BIBAS and Maxime MERY 11.1. Introduction 165 11.2. Is living in our ""natural"" home a tenable model? 168 11.3. Tackling aging and frailties through intergenerational living. 170 11.4. Conclusion 175 11.5. References 176 Chapter 12. Cross-Sector Collaboration in Healthcare: A New Paradigm for a Preventative and Inclusive Approach 179 Pauline FAIVRE 12.1. Introduction 179 12.2. Theoretical framework 182 12.3. Case study of a social geriatrics program: the Fondation AGES 185 12.4. The importance of the social mission for a preventative approach to healthcare 189 12.5. Conclusion 191 12.6. Appendix: example social geriatrics detection tool 192 12.7. References 193 Chapter 13. Co-Designing a Web Platform for Older Adults’ Social Participation in Quebec 195 Valérie POULIN, Mélanie LEVASSEUR, Marie-Michèle LORD, Hélène CARBONNEAU and Rébecca GAUDET 13.1. Context 195 13.2. Theoretical framework 196 13.3. Method: action research 198 13.4. Results 201 13.4.1. Platform objectives, functionalities and content 201 13.5. Discussion. 204 13.6. Conclusion 206 13.7. Acknowledgments 207 13.8. References 208 List of Authors 211 Index 215
Corinne Grenier is Senior HDR Professor of Strategy and Innovation, and Scientific Director of the ""Territoires API"" research chair (Inclusive and Enabling, KEDGE Business School, France). Elizabeth Franklin-Johnson is Associate Professor of Strategy and Sustainable Development, and Researcher for the ""Territoires API"" research chair (Inclusive and Enabling, KEDGE Business School, France). Giovany Cajaiba-Santana is Associate Professor of Sustainable Development and Ethics at the International University of Monaco, and Researcher for the ""Territoires API"" research chair (Inclusive and Enabling, KEDGE Business School, France).
