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Palliative care for older people

A public health perspective

Lieve van den Block Gwenda Albers Sandra Martins Pereira Bregje Onwuteaka-Philipsen

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English
Oxford University Press
28 May 2015
Palliative care for older people: A public health perspective offers not only insights into the current state of policy work around the world; it also offers examples of good practice and recommendations for the future. Recommendations that can inspire, support, and direct healthcare policy and decision-making at organisational, regional, national and international levels. Aimed at policy and decision-makers on a worldwide level, this book is essential reading for managers in healthcare as well as healthcare professionals and practitioners working in public health, palliative care, and geriatric medicine.

Edited by:   , , , ,
Imprint:   Oxford University Press
Country of Publication:   United Kingdom
Dimensions:   Height: 247mm,  Width: 172mm,  Spine: 18mm
Weight:   582g
ISBN:   9780198717614
ISBN 10:   019871761X
Pages:   336
Publication Date:  
Audience:   Professional and scholarly ,  Undergraduate
Format:   Paperback
Publisher's Status:   Active
PART I Palliative Care for Older People : An introduction 1: Gwenda Albers, Sandra Martins Pereira, Bregje Onwuteaka-Pchilipsen, Luc Deliens, Roeline Pasman, Lieve Van den Block: A public health perspective to palliative care for older people: An introduction PART II Organization of and policies for palliative care for older people 2: Zeynep Guldem OEkem: Long-term Care Systems 3: Katherine Froggatt and Hazel Morbey: Development of palliative care in long-term care 4: Hubertus Vrijhoef and Liesbeth Borgermans: Development of integrated person-centred care in long-term care 5: Richard Harding, Richard A. Powell and Liz Gwyther: Policies on palliative care for older people in Africa 6: Cynthia Goh, Sumytra Menon and Noreen Chan: Policies on palliative care for older people in Asia 7: David Currow and Jane Phillips: Policies on palliative care for older people in Australia 8: Carlos Centeno, Jose Miguel Carrasco, Kathrin Woitha and Eduardo Garralda: Policies on palliative care for older people in Europe 9: Katherine Ornstein and Diane Meier: Policies on palliative care for older people in North America 10: Liliana De Lima, Lilian Hidalgo, Rocio Morante and Jose Parodi: Policies on palliative care for older people in Latin America and the Caribbean PART III Socio-cultural and clinical context of dying in old age 11: Joachim Cohen and Merryn Gott: Dying in place in old age: public health challenges 12: Symptoms and trajectories experienced by older people approaching and at the end of life: Implications to care: Symptoms and trajectories experienced by older people approaching and at the end of life: Implications to care 13: Agnes van der Heide and Kenneth Chambaere: End-of-life decisions for older patients who are approaching death 14: Jennifer Shaw and Margaret Battin: Ethical issues in palliative care for older people 15: Marjolein Gysels: Cultural issues in palliative care for older people 16: Marie-Jose Gijsberts: Spirituality and spiritual palliative care in older people PART IV Use and access of palliative care for older people 17: Thomas Carroll and Timothy Quill: Use of generalist and specialist palliative care for older people 18: Allan Kellehear: Compassionate communities: Caring for older people towards the end of life 19: Ladislav Volicer, Noorhazlina Binte Ali and Joyce Simard: Palliative care for older people with dementia 20: Hazel Morbey and Sheila Payne: Ladislav Volicer, Noorhazlina Binte Ali and Joyce Simard 21: Ruth Piers, Nele Van Den Noortgate and Andre Vyt: Collaboration between professionals as a necessary condition for palliative care 22: Kristian Pollock and Jane Seymour: Communication and advanced care planning (ACP) in older people PART V Innovations in palliative care for older people 23: Anne-Sophie Parent: EU civil society initiatives to protect the right to live and die in dignity 24: Clare Gardiner, Tony Ryan, Merryn Gott and Christine Ingleton: Care pathways for older people in need of palliative care 25: A program for advance care planning for older people: Respecting Patient Choices: A program for advance care planning for older people: Respecting Patient Choices PART V Conclusion: What does a public health approach to improving palliative care in older people look like? 26: Sandra Martins Pereira, Gwenda Albers, Bregje Onwuteaka-Philipsen, Luc Deliens, Roeline Pasman, Lieve Van den Block: A public health approach to improving palliative care for older people Index

Lieve Van den Block, MSc, PhD, is Professor of communication and education in family medicine at the Vrije Universiteit Brussel. She also works as postdoctoral researcher of the Fund for Scientific Research Flanders working in the End-of-Life Care Research Group of the Vrije Universiteit Brussel and Ghent University in Belgium where she chairs the research on palliative care for older people. She holds a Master in Clinical Psychology and a PhD in Medical Social Sciences. She coordinates the EURO SENTI-MELC study, a study occupied with monitoring end-of-life care using sentinel networks of general practitioners in Europe, and is executive coordinator of EU FP7 EURO IMPACT (2010-2014) project, a Marie Curie Initial Training Network on palliative care, and coordinator of EUFP7 PACE on Effectiveness of Palliative Care for Older People (2014-2019). Gwenda Albers MSc, PhD, is postdoctoral research fellow on the EU FP7 EURO-IMPACT project at the Vrije Universiteit Brussels. She has a background in Health Sciences and has been involved in palliative care research since 2008. Her research has been focused on quality of life, dignity, dementia and palliative care for older people. She has been working on several projects (a.o. EU FP7 PRISMA), was a visiting researcher at King's College Cicely Saunders Institute in London and obtained her PhD in 2012 from the VU University Amsterdam. Sandra Martins Pereira, MSc, PhD, is postdoctoral research fellow on the EU FP7 EURO-IMPACT project at the VU University medical center, EMGO Institute for Health and Care Research in Amsterdam, the Netherlands. She obtained her PhD and MSc in Bioethics, and obtained Post-Graduation in Palliative Care, Graduation in Educational Sciences and in Nursing. She is an integrated member of the Office for Research in Bioethics at the Institute of Bioethics, Catholic University of Portugal. Bregje Onwuteaka-Philipsen, PhD, is professor of End-of-life Research at the VU university medical center, EMGO Institute for Health and Care Research in Amsterdam, the Netherlands. She leads the research group 'Public Health at the end of life' of the department of public and occupational health, is program director of research program 'Quality of Care' of the EMGO Institute, and the inter-institutional research program 'Quality of life in cancer and immunology', and board member of Expertise Center for Palliative Care. In 2008 she received a career award of the Netherlands organization of scientific research (NWO, VICI scheme) for the research program 'the patient perspective in end-of-life care: personal dignity, preferences and participation'. She has substantial experience at leading and cooperating in national and international multidisciplinary research programs and has over 200 papers in international peer reviewed journals. Roeline Pasman, MA, PhD, is senior researcher End-of-Life Studies at the VU University medical center, EMGO Institute for Health and Care Research in Amsterdam, the Netherlands. She is trained as a nurse and has a Master in Sociology. She supervises PhD students in their qualitative and quantitative studies on different end-of-life topics (shared decision making, dignity, advance care planning, hospice care). She also participated in the EU FP7 PRISMA project and participates in the EU FP7 EURO-IMPACT project. She participates in the teaching course Qualitative Research for Health Sciences at the Vrije Universiteit Amsterdam. Luc Deliens, PhD, Professor of Public Health and Palliative Care. He is qualified in Medical Sociology, and director of the End-of-Life Care Research Group (a multidisciplinary research team of about 40 researchers with clinical (general practitioners, clinical oncologists, geriatricians, nurses), sociological, psychological and ethical backgrounds) at the Vrije Universiteit Brussel & Ghent University, Belgium. He is Co-Chair of the European Association for Palliative Care Research Network, and Scientific Director of EU FP7 EURO-IMPACT project. He has successfully supervised 27 PhD students and is currently supervising around 20 PhD students, and published over 300 journal articles, and over 50 book chapters.

Reviews for Palliative care for older people: A public health perspective

Anyone interested in the bigger, public health aspects of palliative care, or where it is or should be going, will find this book interesting. * Roger Woodruff; Hospicecare.com, January 2016 * This is a high quality well written and painstaking researched textbook, which deserves a place in any university or hospice library, where it is likely to be well used. Currently there is nothing else on the market in this area that is as up to date and can compare. * Robert Becker, Independent Lecturer in Palliative Care, Nursing Times *


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