Metamorphosis

Who We Become after Facial Paralysis

Faye Linda Wachs

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Hardback

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English

Rutgers University Press
11 October 2023

Biography: general; Disability: social aspects; Illness & addiction: social aspects; Coping with disability

Losing her smile to synkinesis after unresolved Bell's Palsy changed how Faye Linda Wachs was seen by others and her internal experience of self. In Metamorphosis, interviewing over 100 people with acquired facial difference challenged her presumptions about identity, disability, and lived experience. Participants described microaggressions, internalizations, and minimalizations, and their impact on identity. Heartbreakingly, synkinesis disrupts the ability to have shared moments. When one experiences spontaneous emotion, wrong nerves trigger mis-feel and misperception by others. One is misread by others and receives confusing internal information. Communication of and to the self is irrevocably damaged. Wachs describes the experience as a social disability. People found a host of creative ways to reinvigorate their sense of self and self-expression. Like so many she interviewed, Wachs experiences a process of change and growth as she is challenged to think more deeply about ableism, identity, and who she wants to be.

By: Faye Linda Wachs
Imprint: Rutgers University Press
Country of Publication: United States
Dimensions: Height: 229mm, Width: 152mm, Spine: 30mm
Weight: 399g
ISBN: 9781978805323
ISBN 10: 1978805322
Pages: 226
Publication Date: 11 October 2023
Recommended Age: From 18 to 99 years
Audience: General/trade , College/higher education , Professional and scholarly , ELT Advanced , Primary
Format: Hardback
Publisher's Status: Active

FAYE LINDA WACHS is a professor of sociology at Cal Poly Pomona. She is the coauthor, with Shari L. Dworkin, of the award-winning book Body Panic: Gender, Health and the Selling of Fitness.

Reviews for Metamorphosis: Who We Become after Facial Paralysis

“Metamorphosis is a groundbreaking, nuanced study of the experience of facial paralysis (FP) and synkinesis. This is the first academic book on synkinesis or facial paralysis, and Wachs is the perfect person to write it.” -- Kathleen Bogart * Director of the Disability and Social Interaction Lab at Oregon State University * “Metamorphosis is an important contribution to sociology of the body, critical disability, and sociology of emotion scholarship, as well as being of interest and use to anyone interested in understanding more about the nuts and bolts of face-to-face communication; Wachs is a gifted writer.” -- Travers * author of The Trans Generation: How Trans Kids (and Their Parents) Are Creating a Gender Revolution *