Valerie Pepe is the Chairwoman of the annual AMC (Arthrogryposis Multiplex Congenita) Music Festival which raises funds and awareness about her rare congenital birth defect. She is the author of two published memoirs, Deformed: My Remarkable Life (2016) and Deformed: My Remarkable Life Continues (2020), and a children's book, Valerie's Remarkable Steps (2022). Every workday, Valerie commutes from her family home in Staten Island to her job in Manhattan where she works as a Business Analysis Specialist in the Environmental Health and Safety Department at the New York City Housing Authority.