Lost Lullaby

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Deborah Golden Alecson Director of Bioethics Bruce Jennings (Vanderbilt University)

Lost Lullaby

Deborah Golden Alecson, Director of Bioethics Bruce Jennings (Vanderbilt University)

$49.95

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English

Deborah Golden Alecson
15 October 2014

Medical ethics & professional conduct; Gynaecology & obstetrics; Paediatric nursing

Lost Lullaby makes one think the unthinkable: how a loving parent can pray for the death of her child. It is Deborah Alecson's story of her daughter, Andrea, who was born after a full-term, uneventful pregnancy, weighing 7 pounds 11 ounces, perfectly formed and exquisitely featured. But an inexplicable accident at birth left her with massive and irreversible brain damage. On a vitality scale of one to ten, her initial reading was one. And so begins Deborah Alecson's heart-rending struggle to come to terms with two desperately conflicting and powerful emotions: her desire to nurture and love Andrea, and her desire to do everything in her power to bring about her death. Told in a mother's voice, with a simplicity and directness that heighten the intensity of the drama that unfolds, Lost Lullaby reaffirms the human dimension of what is too often an abstract and purely theoretical discussion. During the two months that Andrea spent in the Infant Intensive Care Unit, Ms. Alecson spoke with lawyers, doctors, and ethicists in an effort to understand the legal, medical and ethical implications of her plight. She recounts those discussions and describes legal cases that have a direct bearing on her own situation. Her battle-both in coming to the agonizing decision to let her child die and in convincing the medical and legal establishments to respect that decision-will engender empathy for the plight of many families, and an awareness of the need to use medical technology with restraint. It is a must-read for everyone who cares about how we make life-and-death decisions on these new medical, legal, and moral frontiers.

By: Deborah Golden Alecson
Foreword by: Director of Bioethics Bruce Jennings (Vanderbilt University)
Imprint: Deborah Golden Alecson
Dimensions: Height: 229mm, Width: 152mm, Spine: 13mm
Weight: 331g
ISBN: 9781623520700
ISBN 10: 1623520703
Pages: 222
Publication Date: 15 October 2014
Audience: General/trade , ELT Advanced
Format: Paperback
Publisher's Status: Active

Deborah Golden Alecson is a thanatologist and adjunct professor. She designed and teaches a course in medical humanities for the School of Liberal Arts at Excelsior College. She has taught ""Ethics of Health Care,"" ""Death, Dying and Bereavement,"" ""Spirituality in Life Transitions,"" and ""The Sociology of Health and Illness"" for the Schools of Health Science and Nursing at Excelsior College. She has created a course in thanatology that she teaches for Williams College during their Winter Study semester. She writes a monthly newspaper column called ""Musings on Mortality."" She lectures on and writes about dying well in a death-phobic culture as well as other topics. Her website is: http: //www.deborahgoldenalecson.com/ Director of Bioethics, Center for Humans & Nature