Livable Lives

Huntington's disease presents a unique set of challenges, and compounding every single one of them is the fact that it remains so hidden. Livable Lives is a major step toward bringing it out of the shadows. Charles Sabine OBE Founder, The Hidden No More Foundation, and Emmy Award-winning journalist An unvarnished look at how Huntington's disease, as a genetic illness, impacts the entire family. This book is for anyone who wants a better understanding of what it is like to live in a family with an inherited brain disease. Conveyed with compassionate and honest writing, it makes the reader think about how we can care for one another - both physically and emotionally - as well as the limits of caring. I can't recommend it highly enough as a window into the world of Huntington' disease, and, more generally, human suffering, dignity, and resilience. Karen Elta Anderson, MD Director, Georgetown MedStar Huntington Disease Care, Education and Research Center, an HDSA Center of Excellence Personal stories are incredibly important. They're especially valuable when the subject is surrounded by stigma or taboo, as is the case with Huntington's disease in some families and cultures. Sharing stories in this way is an act of generosity. It helps others learn about this complex disease, identify coping strategies, and above all, understand that they are not alone. Svein Olaf Olsen President, International Huntington Association A wonderful collection of stories that sheds light on what it's actually like to live with Huntington's Disease and that offers poignant examples of how we can all live our own Livable Lives. Erin Paterson Author of All Good Things and Huntington's Disease Heroes