Leigh, My Amazing Son

He carried his disability with grace and dignity

Charlene McIver

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Paperback

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English

Charlene McIver
20 December 2018

Social discrimination; Ethnic minorities & multicultural studies; Disability & the law; Health systems & services

"""Leigh, My Amazing Son"" offers an intimate glimpse into the life of Leigh, a child born in 1982 with profound physical challenges. Crafted by his mother, Charlene, this poignant narrative traces Leigh's remarkable journey from birth to his tragic passing in 2016.

This touching story follows Leigh and his family as they navigate a series of daunting surgical procedures, some with challenging outcomes. Leigh's life was marked by frequent seizures, persistent health issues, chronic pressure sores, and the relentless progression of scoliosis, all compounded by a profound family tragedy.

The narrative also delves into the family's unwavering determination to secure mainstream education for Leigh during the 1980s and 90s. Their subsequent battle against discrimination while seeking employment serves as a testament to their resilience and unwavering love.

Furthermore, this biography is a tribute to the advancement of patient care. Leigh's experiences within the hospital system spurred essential revisions to the Consensus Resuscitation Plan and CPR information sheet, adopted by two prominent Melbourne hospitals in Australia.

""Leigh, My Amazing Son"" stands as a profoundly moving biography that will deeply resonate with anyone who has a disability, caregivers, and individuals who embody compassion and empathy."

By: Charlene McIver
Imprint: Charlene McIver
Dimensions: Height: 229mm, Width: 152mm, Spine: 12mm
Weight: 318g
ISBN: 9780648417804
ISBN 10: 0648417808
Pages: 172
Publication Date: 20 December 2018
Audience: General/trade , ELT Advanced
Format: Paperback
Publisher's Status: Active

Charlene is a compassionate, pragmatic and determined individual who has coped with heartache many of us do not wish to imagine. Her younger son, Leigh, was diagnosed with a disability soon after birth. Throughout his life, Charlene cared for Leigh and advocated for him in every aspect of his life, including his interactions with the hospital system. After the sudden loss of Leigh, she set about instigating changes to a Melbourne hospital's end-of-life policy and procedure. Although only small changed were initiated, she believes they will make a difference to anyone having to deal with the traumatic experience of losing a loved one.