Leigh, My Amazing Son

He carried his disability with grace and dignity

Charlene McIver

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Hardback

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English

Charlene McIver
20 December 2018

Social discrimination; Ethnic minorities & multicultural studies; Disability & the law; Health systems & services

'Leigh, My Amazing Son' provides an insight into the life of a child born with a severe physical disability. Charlene tells the story of her youngest son, Leigh, from his birth to his sudden tragic passing in 2016.

Follow Leigh and his family as they undergo many surgical procedures, some of which have unfavorable outcomes. Charlene describes how they deal with Leigh's frequent seizures and chronic pressure sores caused by progressive scoliosis. As well as their efforts to enroll Leigh in mainstream education and, subsequent to that, to obtain employment despite discrimination.

This book is also dedicated to improving the quality of patient care. Inadvertently, Leigh played an integral role in this endeavor. The Consensus Resuscitation Plan and accompanying information sheet on CPR, which are used by two major hospitals in Melbourne, Australia, have been revised based on Leigh's experiences within the hospital system.

This moving biography will undoubtedly resonate with anyone who has a disability, is a caregiver, or simply has compassion for others.

By: Charlene McIver
Imprint: Charlene McIver
Country of Publication: Australia
Dimensions: Height: 229mm, Width: 152mm, Spine: 14mm
Weight: 490g
ISBN: 9780648417828
ISBN 10: 0648417824
Pages: 172
Publication Date: 20 December 2018
Audience: General/trade , ELT Advanced
Format: Hardback
Publisher's Status: Active

Charlene is a compassionate, pragmatic and determined individual who has coped with heartache many of us do not wish to imagine. Her younger son, Leigh, was diagnosed with a disability soon after birth. Throughout his life, Charlene cared for Leigh and advocated for him in every aspect of his life, including his interactions with the hospital system. After the sudden loss of Leigh, she set about instigating changes to a Melbourne hospital's end-of-life policy and procedure. Although only small changed were initiated, she believes they will make a difference to anyone having to deal with the traumatic experience of losing a loved one.

Reviews for Leigh, My Amazing Son: He carried his disability with grace and dignity

Excellent book - very moving. A valuable source of information for other carers...... K. Lennon. ""It has always been a concern to me personally that our health system fails to recognise the journey that many of our patients travel and sometimes how demanding that journey is on their families. That we particularly fail those with a disability who have to engage with the health system continually throughout their lives. The NDIS is seen as the panacea for those with a disability but until the health system commits to providing a level of care that their health condition demands, then all the money thrown at the NDIS will not bring them the quality of life they deserve."" ...Christine Blackburn - Physiotherapist.