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Handbook of Perinatal and Neonatal Palliative Care

A Guide for Nurses, Physicians, and Other Health Professionals

Rana Limbo Charlotte Wool Brian S. Carter



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Springer Publishing Co Inc
30 December 2019
The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and evidence-based reference for all members of the palliative care team. The book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care.

Encompassing the perspectives of neonatologists, maternal-fetal medicine and other physicians, neonatal and perinatal nurse practitioners, midwives, nurses in all sectors of perinatal care, and child life specialists, chaplains, social workers, genetic counselors, lactation consultants, and others, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision making, and effective support for grief and bereavement. It addresses all palliative and neonatal palliative care settings, including home care, and covers elements of comfort care, such as pain medication and oxygen.

Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking-focused questions. Some chapters also include supportive online materials, such as video clips of interactions between healthcare professionals and the family, demonstrating family support and clinician skills. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words.

Key Features:

Comprehensive and authoritative knowledge from recognized leaders in the field Addresses a growing need for specific provider resources in neonatal palliative care Covers the clinical and emotional aspects of palliative care for babies and their families Abundant resources for effective and compassionate family-centered care Case studies with critical thinking questions Accompanying video clips of healthcare and family interactions
Edited by:   Rana Limbo, Charlotte Wool, Brian S. Carter
Imprint:   Springer Publishing Co Inc
Country of Publication:   United States
Dimensions:   Height: 229mm,  Width: 152mm, 
Weight:   790g
ISBN:   9780826138392
ISBN 10:   082613839X
Pages:   388
Publication Date:   30 December 2019
Audience:   Professional and scholarly ,  Undergraduate
Format:   Paperback
Publisher's Status:   Active

Rana Limbo, PhD, RN, CPLC, FAAN, earned her bachelor of science in nursing at St. Olaf College, a master's in maternal/child nursing at the University of Colorado, and a second master's at Indiana University in adult/psychiatric mental health nursing. She earned her PhD at the University of Wisconsin-Madison. These dual interests in childbearing families and mental health have defined her career in perinatal bereavement. Dr. Limbo is best known as a co-founder, in 1981, of the perinatal bereavement program Resolve Through Sharing(R). The program's success has led to intense training for over 50,000 professionals in providing quality perinatal bereavement care that has touched millions of families. Her work has included the roles of bedside nurse, clinical nurse specialist, researcher, author, and speaker. She has published numerous journal articles, book chapters, and co-edited or co-authored six books. She has focused her research efforts on miscarriage, guided participation (a teaching/learning theory), and bereaved family caregiving. In addition to having received numerous awards throughout her career, she is a Fellow in the American Academy of Nursing. Charlotte Wool, PhD, RN, FAAN, earned her bachelor of science in nursing from Bloomsburg University and began her career cross training in perinatal and neonatal units. She became a clinical nurse specialist after graduating from the University of Phoenix with a master's in nursing. In that role she taught undergraduates, wrote and taught curricula for registered nurses in obstetrics and the NICU, developed and managed community perinatal education, and provided care at the bedside. Her diverse roles enabled her to work with parents across the pregnancy trajectory and informed her current program of research in perinatal palliative care. Dr. Wool earned her PhD in nursing from the University of Texas at Tyler in 2011. She has designed and executed numerous studies that broaden the evidence base in perinatal palliative care, including the creation of two psychometrically sound instruments that have been translated into several languages and are in use internationally. As a leader in perinatal palliative care, Dr. Wool continues to focus on the needs of parents and the clinicians who care for them. She has increased our understanding of what parents who anticipate the loss of their infant want and need. Dr. Wool actively partners with experts in the field to ensure an interdisciplinary voice in her publications. She has co-authored palliative care position statements for the National Association of Neonatal Nurses and the National Perinatal Association. Dr. Wool is a frequent invited speaker for international organizations and maintains her primary interest in excellent outcomes for families. In recognition of her ongoing contributions to the field, she was inducted as a Fellow into the American Academy of Nursing in 2019. Brian S. Carter, MD, FAAP, earned his bachelor of science in biology at David Lipscomb College and his medical doctorate from the University of Tennessee, College of Medicine--both with honors. He completed his residency in pediatrics at Fitzsimons Army Medical Center and his fellowship in neonatal-perinatal medicine at the University of Colorado--he is Board Certified in both. His scholarly interests have long included medical ethics and palliative care. Dr. Carter joined other early pediatric palliative care advocates and helped lead the way toward the integration of palliative care within the NICU and in the prenatal diagnostic clinics. His work has included decision-making in the NICU, incorporating parents into the care of their newborn, post-NICU follow-up, and the interdisciplinary team's role in neonatal-perinatal palliative care. He continues to practice neonatology, see patients in follow-up, teach, write, and speak. He has published numerous peer-reviewed journal articles, book chapters, and co-edited or co-authored three books. He is a Fellow of the American Academy of Pediatrics and received honors from the AAP and the National Hospice and Palliative Care Organization.

Reviews for Handbook of Perinatal and Neonatal Palliative Care: A Guide for Nurses, Physicians, and Other Health Professionals

Drs. Limbo, Wool, and Carter [offer] well-articulated definitions, skills, and strategies based on sound evidence for providing this needed support in the perinatal and neonatal setting. . . . I applaud these editors and chapter authors in writing and bringing these materials together such that we are able to continue to change practice, so it is more holistic yet individualized to the unique needs of this baby and this family. - Jacqueline M. McGrath, PhD, RN, FNAP, FAAN Thelma and Joe Crow Endowed Professor, Vice Dean for Faculty Excellence, School of Nursing, University of Texas Health Science Center San Antonio The Handbook of Perinatal and Neonatal Palliative Care is an extraordinarily comprehensive and well-written volume that should be read by every clinician caring for pregnant women and newborns. The case-oriented format of each chapter makes the volume readable and also useful as a resource in complex situations. The book spans all aspects of the clinical and compassionate care of patients, families, and caregivers. Written by experts from all clinical disciplines, including medical and surgical physicians, mental health professionals, nurses, therapists, and chaplains, it shows great respect for and gives voice to affected families and their babies. - Alan R. Fleischman, MD Professor of Pediatrics, Professor of Epidemiology and Population Health, Senior Associate, Center for Bioethics, Albert Einstein College of Medicine, Children's Hospital at Montefiore Bronx, New York

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