Haemophilia in Aotearoa New Zealand

More Than A Bleeding Nuisance

Julie Park, Kathryn Scott, Deon York , Michael Carnahan

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English

Routledge
30 September 2020

Haematology; Medical anthropology

Series: Routledge Studies in Health and Medical Anthropology

Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

By: Julie Park, Kathryn Scott, Deon York, Michael Carnahan, Jan-Willem Andre de la Porte
Imprint: Routledge
Country of Publication: United Kingdom
Dimensions: Height: 234mm, Width: 156mm,
Weight: 453g
ISBN: 9780367662349
ISBN 10: 0367662345
Series: Routledge Studies in Health and Medical Anthropology
Pages: 238
Publication Date: 30 September 2020
Audience: College/higher education , Primary
Format: Paperback
Publisher's Status: Active

Julie Park is Professor Emerita of Anthropology at the University of Auckland, New Zealand. Kathryn M. Scott works in social research and advocacy. She is an Honorary Research Fellow in Anthropology at the University of Auckland, New Zealand. Deon York works in the health sector. He is currently President of the Haemophilia Foundation of New Zealand (HFNZ) and on the Board of Directors of the World Federation of Hemophilia (WFH). Michael Carnahan has worked in health services management and is former President of the Haemophilia Foundation of New Zealand (HFNZ).