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End of Life and People with Intellectual and Developmental Disability

Contemporary Issues, Challenges, Experiences and Practice

Roger J. Stancliffe Michele Y. Wiese Philip McCallion Mary McCarron

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Hardback

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English
Springer Nature Switzerland AG
12 June 2022
This book on end of life examines how to include people with intellectual and

developmental disability in the inevitability of dying and death. Comprising 17

chapters, it addresses challenging and under-researched topics including suicide,

do-not-resuscitate, advance care planning, death doulas and accessible funerals.

Topics reflect everyday community, palliative care, hospice and disability services.

The book proposes that the rights of people with disabilities should be supported

up to and after their death. Going beyond problem identification, the chapters

offer positive, evidence-supported responses that translate research to practice,

together with practice examples and resources grounded in lived experience. The

book is applicable to readers from the disability field, and mainstream health

professionals who assist people with disability in emergency care, palliative care

or end-of-life planning
Edited by:   , , ,
Imprint:   Springer Nature Switzerland AG
Country of Publication:   Switzerland
Edition:   2022 ed.
Dimensions:   Height: 210mm,  Width: 148mm, 
Weight:   847g
ISBN:   9783030986964
ISBN 10:   3030986969
Pages:   519
Publication Date:  
Audience:   Professional and scholarly ,  Undergraduate
Format:   Hardback
Publisher's Status:   Active

Roger J. Stancliffe, PhD FAAIDD FIASSIDD is Professor Emeritus, University of Sydney, Australia. His research aims to make a difference in the lives of people with intellectual disability. He co-edited a special journal issue on end-of-life, is past editor of the Journal of Intellectual & Developmental Disability, and received the AAIDD Research Award.   Michele Y. Wiese, PhD MAPS FASID is Adjunct Fellow, School of Psychology, Western Sydney University, Australia. She is also Honorary Senior Research Fellow at the University of Sydney, and Fellow of the Australasian Society of Intellectual Disability. Dr Wiese is consulting editor to three international peerreviewed journals.   Philip McCallion, PhD ACSW FAASWSW FIASSIDD FGSA Director/Professor, School of Social Work, Temple University focuses on caregiver support, dementia, palliative care and service systems. He is cofounder/ co-principal investigator/coapplicant of the Intellectual Disability Supplement to the Irish Longitudinal Study on Aging; and National Consultant on Intellectual Disabilities and Dementia, U.S. National Alzheimer’s and Dementia Resource Center. Mary McCarron, PhD MA BNS RNID RGN FTCD is Professor of Ageing and Intellectual Disability at Trinity College University of Dublin, Ireland, and Executive Director of the Trinity Centre for Ageing and Intellectual Disability and the National Intellectual Disability Memory Clinic. She is Principal Investigator of The Intellectual Disability to the Irish Longitudinal Study on Ageing- IDS TILDA, and has led extensive longitudinal research in Ireland and internationally on ageing, dementia and end-of-life issues for people with an intellectual disability.

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