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DisElderly Conduct

The Flawed Business of Assisted Living and Hospice

Judy Karofsky

$53.99

Paperback

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English
New Village Press
13 May 2025
The book is a personal account of unmet needs in assisted living and hospice aiming to spark discussions about new approaches for America’s aging population and family decision makers. There are 30 thousand assisted living facilities in the US, but most are unaffordable for middleclass Americans and fraught with staffing deficiencies and mismanagement. Chapters on the author’s experience helping her mother move from an age-restricted community in Florida to independent living in Wisconsin to assisted living will interest seniors and their family members who know the struggle of finding long term affordable care. The chapter on hospice care distinguishes it from assisted living through the author’s experiences and misconceptions, then moves to a broader discussion of Medicare spending, and finally a meditation on dying of old age. The author strikes an effective balance between the personal, political, and cultural aspects of aging. Karofsky dedicates the last chapter of the book to a discussion of recent failures to protect long term care patients during the COVID19 pandemic.
By:  
Imprint:   New Village Press
Country of Publication:   United States
Dimensions:   Height: 216mm,  Width: 140mm, 
ISBN:   9781613322673
ISBN 10:   1613322674
Pages:   224
Publication Date:  
Audience:   Professional and scholarly ,  Undergraduate
Format:   Paperback
Publisher's Status:   Active

Judy Karofsky was a city council member and one of Wisconsin’s first women mayors (Middleton). During her term of office, she established a now-thriving senior center and emergency medical services. She served on the executive staff of a governor and held multiple roles in housing and economic development for a state agency, a nonprofit housing development organization, and her own research firm. Before organizing and providing care for her mother, Judy filled interim positions for a statewide women's network – focusing on elder economic security – and for a coalition of state aging groups. Serving on nonprofit and municipal boards, she participates in policy discussions and comments publicly on demographic trends and urban growth. Judy has authored numerous op-eds, articles, and papers on affordable housing, historic preservation, and regional growth. More recently she has written on institutional investing in seniors housing. delivered keynote speeches, public meeting testimonies, and conference introductions, and she’s participated on panels on a range of issues for women's networks and service organizations. In her role with the Wisconsin Elder Economic Security Initiative, she led discussions with labor union retirees. Judy holds an AB cum laude from Bryn Mawr College (economics) and master’s degrees at Brandeis University (American history) and the University of Wisconsin-Madison (business). She’s taught both corporate and personal finance.

Reviews for DisElderly Conduct: The Flawed Business of Assisted Living and Hospice

Judy Karofsky provides a portrait of the elder care system in the United States that is both intricate and intimate. By sharing the story of her mother’s end of life, Karofsky helps readers navigate the complexities faced by children trying to help parents in their final years of assisted living and hospice. Karofsky’s search for comfort and dignity for her mother is often hampered by an industry that is frequently unresponsive and poorly regulated. This is a book that asks the question: ‘Why can’t we do better?” -- Norman Stockwell Publisher, The Progressive The author’s elderly mother’s journey from independent living and six assisted living facilities and hospice exposes the scam of long-term care in America. Assisted living facilities are 98 percent for-profit—earning 10 to 20 percent profit—have very few regulations, high staff turnover, and no onsite professional staff. Hospices are 70 percent for-profit with a 15 percent profit margin—a Medicare benefit, they are poorly monitored and their bright promise of a ‘good death’ is greatly dimmed by fraud and incompetence. -- Melanie G. Ramey, JD, MSW, Former Executive Director, Hospice Organization and Palliative Experts of Wisconsin (HOPE) A compelling narrative that passionately cries out for a better way to safeguard our most vulnerable. We learn the “better way” is significantly hindered when the profit motive is the driving force. DisElderly Conduct shows in a most powerful way the need for national reform of care for the elderly. -- Martin Schreiber Former Governor, State of Wisconsin, and author, My Two Elaines


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