Disability in the Family

Guidance for Professionals from Parents and Guardians

Barbara Boroson

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Paperback

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English

Routledge
24 November 2023

Organisation & management of education; Teacher training; Teaching of special educational needs; Teaching skills & techniques

This insightful guide shows professionals how to collaborate with parents and guardians of children with disabilities in empathic, respectful, knowledgeable, and supportive ways. Packed with first-hand accounts and advice from parents and guardians, this book shines a light on lived experiences and reveals paths toward meeting families where they are in order to move forward together. Boroson emphasizes that appreciating the real needs of these families is a crucial step beyond mere adherence to a generic set of professional best practices or principles. Whether working in the field of medicine, education, law, mental health, or related services—in any capacity—readers will come away with the holistic knowledge, inclusive language, productive strategies, and differentiated understanding needed to work effectively with the diverse families they serve. Included is a robust array of resources for families, such as books, articles, associations, organizations, and support networks, along with a website for additional, up-to-date resources.

By: Barbara Boroson
Imprint: Routledge
Country of Publication: United Kingdom
Dimensions: Height: 229mm, Width: 152mm,
Weight: 670g
ISBN: 9781032333236
ISBN 10: 1032333235
Pages: 208
Publication Date: 24 November 2023
Audience: Professional and scholarly , Undergraduate
Format: Paperback
Publisher's Status: Active

Acknowledgements Introduction Who Is This Book For? Why Do You Need This Book? Radical Acceptance in the Trenches Chapter 1: Grief and Loss Facing What Is Dealing with Feeling Kids… Facing What Is Giving Up Hope The Comparison Game Chapter 2: Guilt and Shame Is This My Fault? Am I Doing Enough? Am I Good Enough? Typically Developing Siblings Placement Chapter 3: Isolation and Marginalization Not Worth the Risk No One Gets It No One Comes Around Judgment by Kids Judgment by Strangers Judgment by Friends and Family Spouses and Partners Forever Parents Chapter 4: Stress and Fear Exhaustion Loss of Self Financial Burden Asking for Help Behavior and Aggression Burnout Worry Fear For the Future Terminal Illness Chapter 5: Disparities and Disenfranchisement The System Accessibility Health Disparities Unconscious Bias Cultural Perspectives Credibility Deficit Epilogue References Resources for Support

Barbara Boroson, LMSW, is an autism education specialist, dynamic speaker, and the parent of a young-adult child with disabilities. This is her fifth book.