Data Paradoxes: The Politics of Intensified Data Sourcing in Contemporary Healthcare

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Klaus Hoeyer

Data Paradoxes

The Politics of Intensified Data Sourcing in Contemporary Healthcare

Klaus Hoeyer

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English

Massachusetts Inst of Tec
16 May 2023

Medicine; Medicine: general issues

Why healthcare cannot-and should not-become data-driven, despite the many promises of intensified data sourcing.

Why healthcare cannot-and should not-become data-driven, despite the many promises of intensified data sourcing.

In contemporary healthcare, everybody seems to want more data, of higher quality, on more people, and to use this data for a wider range of purposes. In theory, such pervasive data collection should lead to a healthcare system in which data can quickly, efficiently, and unambiguously be interpreted and provide better care for patients, more efficient administration, enhanced options for research, and accelerated economic growth. In practice, however, data are difficult to interpret and the many purposes often undermine one another. In this book, anthropologist and STS scholar Klaus Hoeyer offers an in-depth look at the paradoxes surrounding healthcare data.

Focusing on Denmark, a world leader in healthcare data infrastructures, Hoeyer shares the perspectives of different stakeholders, from epidemiologists to hospital managers, from patients to physicians, analyzing the social dynamics set in motion by data intensification and calling special attention to that which cannot be easily coded in a database. HHe illustrates how data can be at once helpful, overwhelming, and sometimes disastrous through concrete examples. The COVID-19 pandemic serves as a special closing case study that shows how these data paradoxes carry weighty political implications. By revealing the diverse and sometimes contradictory practices spawned by intensified data sourcing, Data Paradoxes raises vital questions about how we might better use healthcare data.

By: Klaus Hoeyer
Imprint: Massachusetts Inst of Tec
Country of Publication: United States
Dimensions: Height: 229mm, Width: 152mm,
Weight: 369g
ISBN: 9780262545419
ISBN 10: 0262545411
Pages: 328
Publication Date: 16 May 2023
Audience: General/trade , ELT Advanced
Format: Paperback
Publisher's Status: Active

Preface vii Introduction: Data Politics 1 1 Data Promises 29 2 Data Living 59 3 Data Work 87 4 Data Experiences 117 5 Data Wisdom 145 6 Data Pandemic 179 Conclusion: Data Paradoxes 213 Notes 239 References 249 Index 301

Klaus Hoeyer is Professor of Medical Science and Technology Studies at the University of Copenhagen and author of the book Exchanging Human Bodily Material- Rethinking Bodies and Markets.