A Parents' Guide to PANDAS, PANS, and Related Neuroimmune Disorders: Information, Support, and Advice...

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Patricia Rice Doran Christine Leininger Amabile

A Parents' Guide to PANDAS, PANS, and Related Neuroimmune Disorders

Information, Support, and Advice

Patricia Rice Doran, Christine Leininger Amabile, Diana Pohlman , Tiffany Tumminaro

$40.99

Paperback

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English

Jessica Kingsley Publishers
15 June 2019

Paediatric medicine; Coping with disability; Advice on parenting

Having a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings.

The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.

By: Patricia Rice Doran, Christine Leininger Amabile, Diana Pohlman, Tiffany Tumminaro, Heather Rain Mazen Korbmacher
Imprint: Jessica Kingsley Publishers
Country of Publication: United Kingdom
Dimensions: Height: 229mm, Width: 154mm, Spine: 9mm
Weight: 260g
ISBN: 9781785927683
ISBN 10: 178592768X
Pages: 160
Publication Date: 15 June 2019
Audience: General/trade , College/higher education , Professional and scholarly , ELT Advanced , Primary
Format: Paperback
Publisher's Status: Active

Patricia Rice Doran is Assistant Professor of Special Education at Towson University, Maryland. Christine L. Amabile is a Licensed Clinical Social Worker, currently working full time in the school system and part time as a private practice outpatient therapist. Wendy Nawara is a social worker and founder of PANDAS/PANS Advocacy and Support, a family support non-profit. She lives in Illinois. Diana Pohlman is founder and Chairman of the Board of PANDAS Network, the primary research non-profit in the USA. She lives in California. Tiffany Tumminaro has been practicing as a social worker since 2004, and is an active member of the PANDAS/PANS Advisory Board through the Illinois Department of Public Health.

Reviews for A Parents' Guide to PANDAS, PANS, and Related Neuroimmune Disorders: Information, Support, and Advice

A Parents' Guide to PANDAS, PANS and Related Neuroimmune Disorders will be a dog-eared, high-lighted, bookmarked constant companion for parents of children with PANS! It packs practical recommendations for parents from parents, with illustrative case vignettes, up-to-date information, and tools for navigating the journey to healing. It will help parents understand these disorders, work collaboratively with medical and educational professionals and care for their children and themselves. I will recommend it to my patients' families and their medical and educational care teams. -- Margo Thienemann MD, Director of PANS Program Psychiatry, Clinical Professor of Psychiatry, Stanford University School of Medicine A Parent's guide to PANDAS, PANS and Related Neuroimmune Disorders is dramatic as it is revealing written by those on the front-line of these debilitating illnesses. This highly-readable guide forces us rethink our definitions of mental illness. Above all, this guide offers coping strategies, hope and optimism the general medical community is unable to give. -- Tim Sorel, Professor, University of Florida, Producer/Director of My Kid is Not Crazy: a search for hope in the face of misdiagnosis