A Family Disease

A Memoir of Multigenerational Ataxia

Dana Lorene Creighton

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Paperback

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English

McFarland & Co Inc
25 January 2021

Sociology: family & relationships; Congenital diseases & disorders; Coping with illness

Dana Creighton and her mother both were affected by the same inherited cerebellar degeneration, known as ataxia--a loss of control over body movements. Both were treated by a healthcare system that failed them in different ways. Yet their experiences were disparate.

Creighton eventually found the right tools to piece together meaning in her life; her mother resisted accepting her condition, in part because doctors repeatedly said nothing was wrong with her. Twenty-five years after her mother's suicide, Creighton's memoir finds striking similarities and differences in their lives and traces a lineage of family trauma.

Drawing on research in neuroplasticity, medical records, personal correspondence and genealogy, the author highlights the gap between the lived experience of a debilitating ailment and the impersonal aims of clinicians. She shows how the stories parents tell themselves about living with a genetic disorder influences how they communicate it to their children.

By: Dana Lorene Creighton
Imprint: McFarland & Co Inc
Country of Publication: United States
Dimensions: Height: 229mm, Width: 152mm, Spine: 10mm
Weight: 272g
ISBN: 9781476683188
ISBN 10: 1476683182
Pages: 202
Publication Date: 25 January 2021
Recommended Age: From 18 years
Audience: General/trade , ELT Advanced
Format: Paperback
Publisher's Status: Active

Dana Lorene Creighton has an MS in exercise physiology and spent her career involved in clinical research and community health. She has contributed to various publications in scientific journals and lives in Durham, North Carolina.